#2 son still has these intermitent attacks - sometimes losing consiousness, sometimes the imobility lasts for 3 or 4 hours........

Big Dave has decided that HE is responsible for watching the lad (except for when he gets bored with it) My job is to keep everyone fed and watered and the house clean and tidy and keep notes on the progress of the attacks (except when Big Dave is watching him and forgets to let me know he's regained the use of his legs)

HE has also decided #2 son should not have visitors, should not go anywhere (even in the car with us), should not go in the loft to play on his computer (I can see the sense in that one, and he has allowed him to play on HIS lap top, but only in the kitchen, and only when supervised......)

I have spoken to him many times about a) how left out I am feeling, cool.gif how alienated this is going to make #3 son, who is also not allowed to go anywhere 'incase something happens' and c) how dependant it's going to make #2 son who up until now has always been a very independant confident child..... He has no quality of life at the moment, he's constantly being nagged about where and how he sits (incase he has an attack and ends up in an uncomfortable position). All he's 'allowed' to do is watch TV, play on the X-box and laptop..........

ARGHHHHHHHHH!!!!!!!!

{{{hugs}}} for you - I think you need some!

You could put it to Big Dave, that maybe watching TV, playing computer & x-box games might not be too good- my daughter suffered a series of "episodes" as a teenager, and it seemed as if the trigger was a slghtly flickering of flurescent lights. The flickering of a screen can have the same effect.

More to the point to let him have as normal a life as possible, so that you can find out what the triggers are - and as you say, it's important for the rest of the family to feel involved, not neglected.

It's a difficult time for you all, and you are all in my prayers.

Margot

Sorry digger, I must be in a silly mood but my first reaction as to put son in a crate so he is safe :D It is always very difficult at these times with everyone under stress. Perhaps a 'family talk' will help everyone feel involved and explain to everyone why you (as a family) need to work to gether and set certain new rules until this is at least understood. Oh and stuff the house cleaning enjoy some family time! If it was my mum she would have enforced a few games of cards by now, always the order of the day when one of us was unwell. ((hugs)).