2 ME support groups in Glasgow, really close by and phone numbers to call them as well for advice.

Doesn't have to be on FB - that fantastic thyroid group was a Yahoo! group, then it turned into a forum like this one.  They are out there.

I can not go in to things but due to problem the police have advised me to stay of fb
remmber i do not have car i use buses and trains to go to places
my gp WONT !!!!! Refer me to pain clinic !!!!!!!! As i am manging i would rather take my gp advice he nows what he talking about !!!!!!!! I am not going to be bullied by people to go back its my choice my life

I wouldn't dream of bullying anyone...but it sounds to me like you've been given some helpful advise, even without Facebook you can do something to help yourself and move forward.....give it a go....you've got nothing to lose.

Its not you charlie brown
i have taken few new hobbies up take lot of homopathy tablets my doc says i am doing really well and to keep going with homopathy and hobbies .reading garding etc my two consultants one back other hip say same to keep what i am doing they all same its points to refer to pain clinic

Nobody is bullying you, we are trying to help.  There's no point shouting and getting annoyed about the pain clinic thing - at no point previously have you said that your GP will not refer you, you have only said he thinks it's pointless and that you don't want to go.  That is not the same as "won't".

Also, I imagine a fair few of us have learned over the years that GPs don't know everything, and that there may be options you aren't aware of locally so we are trying to suggest possibilities for you, since you started this thread about losing a treatment option which was helping you.

And I'll say again - support groups don't have to be on FB, it was an example.  My thyroid forum was not on FB, but it still helped immensely.  There are always options.

http://www.nmec.org.uk/support-other.html this might be helpful

Sounds to me like all the suggestions on here from people come from their personal experience so worth investigating, there are obviously a lot of people that have the same issues that you do so they understand.

It's in draft stage at present so nothing should change as yet.
It's daft for a GP to refer for a set amount of treatments as often no change after two or three sessions means the person is unlikely to respond so why waste further sessions? Placebo and anecdotal evidence are strong things in my opinion and as pain is 100% subjective it's sometimes impossible to trial everything.
So many drugs are used off licence because they have been found to help with other things but it's too expensive to do another trial.

Acupuncture doesn't make the problem go away when used in western medicine. It is rarely used as a stand alone treatment but often to help things settle before starting exercise programmes etc. the draft is mainly considering chronic non specific lower back pain and yes the things that do work best are correct information (being told you have a 'crumbling' or 'collapsed' spine by a doctor or whoever isn't going to help a therapist encourage you to do an exercise programme!), a useful set exercises and education to do in your own time as well as under supervision, manual therapy and some cbt and education around chronic pain and how it is not proportionate to tissue damage are all essential.
I find what often works best is what the patient wants. Yes it's not always clinically indicated (never dangerous!!) but if they KNOW massage will make them better I can pretty much bet they will get 'better' with a bit of massage. It's trying to get them on board to do the rest to prevent recurrence.

Too many people are adamant they want an X-ray or scan when it is just not indicated but as they nag and nag they usually get sent for one at great expense. Surely the doctors should be able to stand firm on this without the fear of any come back.
My friend had a bad back and a chiropractor told her she needed an MRI. I asked her why and she said she had better have one just in case. Just in case of what?? She had no radiating pain or inflamatory things going on and wouldn't have had surgery so it is 100% pointless. She's done a load of exercises and it's completely settled. The MRI would have been a huge waste of money.

So yes from experience I think acupuncture can help with an acute flare up of a chronic back to help settle the acute pain but then exercises/manual therapy and education etc are the way forward. For just a long standing grumbling chronic back hmmmm I'm not so sure it is the best thing. It isn't what I would  do first anyway.

Oh and it depends what they define as acupuncture in the trials. Is it dry needling or using actual points?? Many of the sham needling trials are in themselves poor.
I find it interesting no physiotherapists were involved in the main analysis team either. Maybe it's time to get more involved in the research...

I find that acupuncture often helps greatly with a persons psychological and wellbeing aspect of pain therefore it can have a real place in helping people actually start moving. It follows use of a biopsychosocial model. Why should it not be used as a window of opportunity for the patient to be better motivated to perform the exercises?

I'm also keen to see what has happened between 2009 and now for the guidance to change.

I've had lower back problems since knee surgery in December. I think the problem has come about as I have been walking awkwardly for the last few years as the knee deteriorated and now the other knee is needing attention causing me to stand and walk at an odd angle.
I've found, by trial and error, that using Nordic Walking poles when out walking has been very helpful as they make you walk in a more upright manner and the back pain is much less severe. Because I'm begining to walk more and further, the pain is gradually begining to abate. I can still walk the dog using a dog walking belt leaving my hands free to use the poles.

There are lots of things you can do to help yourself.  I hurt my knee last year and was unable to walk properly and had pain in my knee and back for months.  The doctor sent me for physio and they recommended acupuncture. My course is now finished but I now have the added knowledge of different exercises I can do to strengthen my knee and I have also been practicing acupressure on myself which also works well for pain relief.  I bought an exercise bike to build up strength in my knees and so far so good.  Every little helps.  I hope you can find a solution that will work well for you.

My friend is personal trainer she has given me loads excircises to do all have bought throw her advice a small trampline and excircis ball

i was born with congintal hip dysplasa left hip i had op on hip when i was 2yr at fab yorkhill hosp in glasgow
I use to limp really bad it was not noticed until my late teens throw physo my left leg was 1in shorter i got raises for my left shoe
my back issus are all on left side it seems from hip dysplasa
i started working when i was 7yr with horses and working with my papa in forge and out in his rounds shoeing horses i was pulling off shoes lifting anivals fire etc
i worked all time 24/7 with horses showing every weekend from age of 7yr write up to 31yr i had to retire due to my back.hip also had 2 back surgarys
my preganys have affected my pelvis now have issues with pelivis
i have one little boy .lost two babies
working from early has damaged my body but loved every min of working i do miss it
Took up showing my pointers after i retired it will be 6yr in may since i started showing hector my liver n white

Sometimes  Jackie to move forward we have to stop looking at the past. Dwelling on past pain,distresses all eat away at you.
I use the this is my first time with this condition well technically with my perforated bowel it is. I've cancelled my op 9n my achilles tendon and plantis fiscitis in 2 weeks. I am used to my leg/foot pain but not my abdo/groin discomfort and scope for more surgery on it. I could scare myself silly looking at negative bowel section removals.

I joined patient first health forums and found similar stories,experiences and tips. Move forward Jackie Try and shelve what's gone on before hard but it is achievable. .