My friends dog has just been diagnosed with this, have any of you come across it. I've googled it but would like to hear from people who have or have known dogs with it.  What kind of life did they have etc any info really would be great.

I was hoping someone on here would have come across this

our clumber spaniel Toby had lymphangeictasia which is a cause of protein losing enteropathy. He was diagnosed in January 2011 and was on steroids, metzodrisonal (sp) and another tablet that could only be handled wearing gloves, and on a veterinary diet(Purina HA). He also had pancreatitis so had Pancrex  granules added to his food.From January 2011 until October 2011 when we lost him, he had a good quality of life with ups and downs, he had to go to the vets for regular blood tests but he coped very well. Toby's case was quite serious and it maybe quite different to other causes of protein losing enteropathy.

We consider that we were lucky that our vet recognized what is a rare disease and referred him quickly to a specialist and we had another 10 months with Toby.

My experience was not a positive one. My standard poodle was diagnosed with this last October. It was diagnosed at a referral hospital via endoscopic biopsies. Unfortunately had had a very severe form. He was diagnosed with inflammatory bowel disease which led to a protein losing enteropathy, then he got pyleonephritis which then led to glomerulonephritis. At one stage he was on 14 different drugs icluding high doses of setroid and cyclosporin. He coped and actually improved and was back to a normal weight even though he was still losing masses of protein but unfortunately he got fluid around his heart and lungs and died peacefully at home 8 months after the diagnosis. He started panting about 48 hours after exertion, i took him to my vets and they diagnosed via x-ray mild pneumonia and unfortunatley he passed away the following morning and the fluid around the heart and lungs were found on post mortem. I would say his life although restricted on what food he could have due to his severe IBD and although he was on a lot of drugs, when he had recovered from his kidney infection he was great in himself. I had 5 months of my normal dog back. He went on the same walks as my other dogs. He played normally and in himself was really chipper and happy. If he had seemed miserable or was not easy to medicate I would have called it a day months before.