Hi all

Does anyone know anything about this terrible disease or know of anyone with it or know of anyone (doctor wise) who specialises in it, my friend has had this disease for 2 years now and has been house bound for the majority of it, she is only 21 and its such a terrible and un known disease i wouldnt wish it on my worst enemy honestly

Just thought its worth a shot, she speaks to people who live abroad with it and there arent many specialists for this condition, her friend is lucky enough to have 1 of them nearby... anyway, worth a shot to ask