has anyone any experiance of this? and how best to deal with it

I've just googled ulcerative collitis and there is a good page on symptoms and treatment that you might want to check out.I know there's no substitute for advice and comment from people who have the condition,and I'm sure someone on cd will be able to help you more.

thankyou i have read and reread the info what i really need to know is about my diet and weather that can help ease the symptoms...

I'm sure someone on this forum suffers with it and there was a thread about it last year if I remember rightly but I cannot remember who it was???

i have Crohns disease so on a similar vein. everyone has different ways of dealing with it, for some folk the medications good, for others dietry changes have an effect. i'm pretty sure that i read smoking is actually good for colitis? my friend from school has Crohns as well and she manages it with diet where as i needed surgery and i was only diagnosed last year :(

have they confirmed its colitis yet? or is this a pending diagnosis?

have a shifty at this site

http://www.nacc.org.uk/content/home.asp

they have lots of useful info.

> thankyou i have read and reread the info what i really need to know is about my diet and weather that can help ease the symptoms...

unfortunately the answers only maybe :(

you might want to try an exclusion diet and see what effects you. common ones are dairy, high fats, for me its fibre and roughage (which is great for me trying to lose weight- i am probably the only fat crohns patient in the world!).

what sort of treatment are they suggesting?

hi
i have been given coddeine phosphate i have to take in tablet form until my sample results return from the hospital.
i have had symptoms for 4 weeks now and i am shattered...i am scared to eat as i know the results..yesterday was my sons birthday and we went to Nandos as i thought i would be safe...15 minutes after leaving i was in the car in so much pain...i only just made it to the loo...
and yet tonight i read some info on the web and had white rice and fish and i am absoluetly fine...and i ate  loads of it....
i am drinking more and feel so tired all the time ..hopefully this will confirm my suspicions or i have no idea which way to turn...

> i would be safe...15 minutes after leaving i was in the car in so much pain...i only just made it to the loo...
>

i know that feeling well. i just got a new boss at work who noticed i am away a lot and i had to explain why :(

try the bland stuff. also if your having a flare up going a bit bland can help to, just to rest the bowel.

when i flare up i feel exhausted but you never know it could be something else.

will pm you as well

thankyou for your help and advice i am so down about this especially as there is no cure and at the moment the not knowing is driving me mad..

i would say don't be down but i can't say i wasn't. actually i wasn't usually down, mainly i was angry about it actually. since i was diagnosed in my final year of uni an angry determination was better than letting it get to me. i did get so tired though.

theres no cure now but they are working on it. don't lose hope :) its livable!

i don't know how they diagnose UC rather than crohns- for me it was a colonoscopy to diagnose and a barium meal to show the extent, so what have you to have done?

hi a barium meal and colonoscopy is the order of the day when the faecal results come back....

barium meal is no bother, fair bit of hanging around though so take a book.

the colonoscopy, i had a really bad experience with mine but thats not to say you will. i just had an idiot doctor and was not actually sedated. if your sedated apparently its fine.

I had a colonoscopy and elected not to be sedated.I wish I had been,although i was the only one who walked off the ward as soon as i was dressed after the procedure.I was lucky in that my bleeding was only piles.Any diagnosis of chronic illness is bound to make you feel down,on top of the symptoms of the illness it takes some time to adjust,but you will.At the moment it sounds as if you've had a flare up and you must feel awful.If you have to, stick with the fish and rice for a few days so that your gut can settle down.It's another of those conditions that are affected by stress,and it's almost impossible not to be stressed when you don't know which way to turn to feel better.Once you have a proper diagnosis you will get the help and advice you need to live with the condition.I bet their is a society for people who suffer from the disease which you can get in touch with for support and advice.

> I had a colonoscopy and elected not to be sedated.I wish I had been,although i was the only one who walked off the ward as soon as i was dressed after the procedure

thats true, i did get out almost immediately, the prob being i was being sedated but they didn't do it right. my mum is an anaesthetics nurse who has assited in colonoscopies millions of times, i described what happened and she was all for sueing!

i did wonder if sedative didn't work on me till my surgery when they sedated me to put in my epidural- i was immediately off my face, i felt like i'd downed several shots but nice lol

glad yours wasn't serious poppity :)

Thanks Kim,I appreciate you saying that :)

a friend of mine had this. I'm not sure what he does about his diet - it has changed, but that's because he was diagnosed with diabetes, too. I know he has a few tablets, and uses a foam enema on a daily basis too?

Sorry to her you are having problems.

Ulcerative colitis like all inflammatory bowel diseases varies so much between sufferers  it really is a case of seeing what works for you.

My daughter has a similar condition; hers is so severe that although she takes many medications she is unable to eat at all and has to have and elemental feed via a tube or if she is really bad, intravenously. Another child I know with the same condition manages with a careful diet and medication.

My daughter is scoped, via both ends, roughly every three months and I am allowed in with her, they really aren't normally that bad so don't worry.
I hope you get some answers soon I shall be thinking of you.